Every month, High Risk Hope would like to highlight ongoing topics, frustrations, or curiosities in your very unique journey with high-risk pregnancy and/or premature birth. Mothers, fathers, family, and friends will touch on their personal tools, tips, and techniques to many of the ongoing concerns you face after having a high-risk pregnancy or a premature infant. Above all, remember that there are no right or wrong answers, only other parents and families figuring it out along the way, just like you. Here is what they have to say this month. Do you have a question you’d like addressed on The Parent Perspective? Email us today!
Taylor Shook| Taitun + Tellas, born at 33 weeks
“COVID-19 has brought flashbacks of NICU days and the first weeks of having our twins at home: we practice more thorough hand washing, take more precautions when going out of the house, and change into clean clothes prior to contacting the babies if we’ve been in public places. These are things many parents of full-term babies may not worry about as much as preemie parents since preemie parents may have spent weeks or months in NICU practicing these routines. Taitun and Tellas were preemies, born during RSV and Flu season, and had respiratory issues from underdeveloped lungs at birth. With Coronavirus rapidly spreading, I have been more cautious and afraid they may contract the disease because of their medical history. In their first year, both babies easily caught colds several times and had RSV, so I am fully aware of how easily they can become ill and often feel anxious about Coronavirus entering my home. Additionally, my husband is in law enforcement coming in contact with the public daily and we share custody of my bonus boys who are spending time between our house and their mom’s while schools are closed. Luckily, I am able to work from home which is a relief to be able to social distance; however, the anxiety does set in when I read about new confirmed cases and the number of people contracting Coronavirus in our area. To stay positive, I help my older sons with their schoolwork, take the babies on neighborhood walks in the bright sunshine, enjoy the extra quality time I am blessed to have with my children right now, and pray. Although this is a scary time, I want to take full advantage of working from home by making memories that will last beyond this virus, showing my children we can be brave together, and of course, doing my best to keep my household healthy. I’ve been seeking the rainbow of hope during quarantine, just like I did during my high risk pregnancy and during our stay in NICU, and I pray other parents can seek this rainbow with me – we’re all together at heart. ”
Tallia Corbett | Magnolia, born at 33 weeks
“In many ways, life in quarantine with an immunocompromised preemie is similar to any other family with a small child: we juggle working from home with entertaining a toddler, we practice the “ABC song” while we wash our hands countless times per day, and find creative ways to burn off all that energy (“Who wants to swim in the bathtub?!”). Sometimes the spread of COVID-19 feels defeating: we’ve already overcome so many odds. Now, this? But I try to use those thoughts to empower us. We HAVE already overcome so many odds. From our time in the NICU we are basically professionals at hand-washing. No taking her out in public or visitors in the home for upwards of 30 days? We’ve heard that before. Guys, we’ve trained for this! So we take heart in the things we can control and try to just enjoy the unexpected gift of this time together. Because the fact that we have this time and this family really is a miracle.”
Jessica Craig | Hannah, born at 24 weeks
“Life in quarantine with my preemie definitely has us with ALL the emotions. We’re nervous, scared, and worried. Even fearful at times. If she sniffles, clears her throat, or even just looks off I’m filled with anxiety. I find myself obnoxiously germaphobic all the while trying not to seem obsessed. I worry less with my older son but with my baby girl, it could possibly kill her. So, I feel it’s okay to be having the mental thoughts that I do. I feel, though, this is bringing us much closer as a family and our strength as a family bond has increased tremendously. We always try to find the positive in things! Love and Light!”